Endometriosis: The 10 Things You Need to Know

Dr. Umme Ruman
Reviewed by Dr. Umme Ruman
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This information has been reviewed and approved by an experienced fertility specialist at Indira IVF to provide accurate and up-to-date guidance for our readers.

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Last updated: August 4, 2026

Synopsis

Endometriosis is a chronic condition that many women experience worldwide but may not fully understand. It is often undiagnosed for long periods, and many women suffer in silence. This article covers the 10 most important facts about endometriosis, including symptoms, causes, diagnoses, ability to become pregnant, treatments, and prevention, so that you can have the information you need to be more aware of endometriosis and make an informed choice about your health.

Introduction

Endometriosis occurs when endometrial tissue, the lining of the uterus, begins to grow outside the uterus, attaching itself to other reproductive organs or, at times, even the abdominal cavity. As a result, endometriosis causes severe pain during the menstrual cycle. Understanding endometriosis helps enable early diagnosis and effective treatment. Here are the 10 things you should know about endometriosis.

10 Things To Know About Endometriosis

  1. Endometriosis is different from regular menstrual pain.

    Women with this condition experience extreme levels of discomfort before, during, and following periods, which last longer than their usual period cramps. Pain may progressively get worse with age.

  2. Endometrial tissue not only grows grows both inside and outside the uterus

    The endometrial tissue that grows elsewhere on your body responds to hormonal changes similarly to the uterine lining, causing inflammation and scarring.

  3. Symptoms of endometriosis extend far beyond just pelvic pain

    Women with endometriosis can experience a wide range of signs and symptoms. Common symptoms include:

    • Severe menstrual cramps
    • Chronic pain in the pelvic region
    • Pain with or after sexual intercourse
    • Pain during bowel movements and urination
    • Heavy menstrual flow, or irregular periods
    • Bloating, nausea, digestive symptoms
    • Fatigue
  4. Endometriosis can be a contributing factor to infertility

    Infertility can occur in individuals with endometriosis. Endometriosis may affect fertility through:

    • Scarring and the development of intra-abdominal adhesions can distort the pelvic anatomy
    • One or both of the fallopian tubes can become blocked by adhesions or scar tissue
    • The quality of eggs can be negatively affected by the presence of endometriosis
    • Endometriosis can create an inflammatory environment, which can prevent the implantation of a fertilised egg
  5. Obtaining a diagnosis of endometriosis can take years

    Women with endometriosis may take an average of 7-10 years to obtain an accurate diagnosis; the main reasons for this delay are:

    • Pain associated with menstruation is seen as a "normal" experience.
    • Women with endometriosis may be misdiagnosed as having other conditions, including irritable bowel syndrome, urinary tract infections, and stress.
    • Limited awareness that symptoms may be due to endometriosis.
  6. There is no exact cause of endometriosis.

    The most common theories about its cause are:

    • Retrograde menstruation: Menstrual blood can flow backward, into the pelvis.
    • Immune system dysfunction: Some women may not have enough ability to fight off endometrial cells that grow outside the uterus.
    • Hormonal imbalances: Hormonal imbalances, including abnormal estrogen levels.
    • Genetics: Women with a family history of endometriosis may have an increased risk of developing this condition, indicating that genetics could possibly contribute to this condition.
  7. Endometriosis is a chronic condition, not a one-time problem

    Endometriosis is a lifelong condition and is a chronic condition. Although it may be manageable, once treatment has ceased, symptoms may recur. Symptoms of endometriosis can fluctuate due to several factors, including pregnancy, hormonal therapy, surgical history, and proximity to menopause.

  8. Treatment depends on symptoms, age, and fertility goals

    There are no absolute treatments available for endometriosis, so each woman will need a customised treatment plan based on her specific needs. Treatment may be provided through medical means, surgery or supportive care.

  9. Endometriosis can also affect mental health.

    Living with chronic pain and problems with fertility can significantly impact one's mental health.

  10. Early recognition and treatment are important.

    Finding out about endometriosis and taking action as early as possible are two of the most important factors for women with endometriosis. Delaying care may worsen symptoms and outcomes.

Conclusion

Women around the world experience endometriosis. It is a complicated, often invisible disease that affects women in all parts of the world. Knowledge of what to look for when symptoms of endometriosis are present and when to seek help can greatly reduce the suffering associated with endometriosis and improve the quality of life for millions of women worldwide. Although there is currently no cure for endometriosis, there are a variety of management tools available that can greatly help women manage their endometriosis and improve their fertility.

Frequently Asked Questions

It is uncommon to develop or have endometriosis after going through menopause, although if you're taking hormone replacement therapy, it could occur.

Currently, there is no permanent cure for endometriosis; however, the symptoms may be managed effectively through either surgical or medical treatments.

While surgery is often an option to relieve pain and improve your chances of conceiving, it really isn't always the first choice when treating endometriosis.

Not all women with endometriosis are infertile; in fact, most women with mild endometriosis conceive without difficulty.

Some women report feeling relief from their endometriosis symptoms during their pregnancy due to hormonal changes, but they may return after they give birth.